Spotlight Community Support Groups
are in the process of gathering stories and articles from support
groups on many topics including: dads and preemies, working with
insurance companies, and more. If your group has information that
you think would be helpful to other families across the globe please
submit it to email@example.com
and it will be considered for inclusion with our PreemieCare
and Related Links
Parenting Resources, Web Site Resource Links- Topcis include:
Insurance Information, Infertility, Pregnancy Info and Support,
Manufacturers of Products for Infants & Pregnancy, Multiple
Birth Organizations, Parenting/Family Information, Medical Information
and Special Issues, MOST Recommended Website Articles
Notebook Glossary: This glossary has been reprinted
with permission from John Wiley & Sons, Inc.: from Your Premature
Baby by Frank P Manginello, MD and Theresa Foy Dd3eronimo, M.Ed.
MOST RSV Campaigns: '04-'05
| '03-'04 |
01 -'02 | 2000-'01 | 1999-2000
the NICU you will often times be told you baby’s weight in
grams vs. pounds and ounces. In order to make it easier for you
and your family and friends to quickly and easily convert the grams
to pounds and ounces you can use this conversion chart.
The very first test given to your newborn,
the Apgar score, occurs right after your baby's birth in the delivery
or birthing room. The test was designed to quickly evaluate a newborn's
physical condition after delivery, and to determine any immediate
need for extra medical or emergency care.
the Apgar score was developed in 1952 by an anesthesiologist named
Virginia Apgar, you may have also heard it referred to as an acronym
for: Activity, Pulse, Grimace,
Appearance, and Respiration.
Apgar test is always given to your baby a minimum of 2 times: once
at 1 minute after birth, and again at 5 minutes after birth. Rarely
- if there are serious problems with the baby's condition and the
first two scores are low - the test may be scored for a third time
at 10 minutes after birth.
learn more about this topic:
Helping Families Overcome Postpartum Depression (PPD)
Fathers Coordinator: David Klinker Phone: 408 268-1098
- Addressing the needs of men whose wives suffer from PPD.
Frequently Asked Questions about Prematurity
and Early Intervention
completed list is in the Early Intervention and the Higher Order
Multiple Birth Families Parenting Package available in the MOST
Frequently Asked Questions about
completed list is in the Breast Feeding Triplets, Quadruplets, &
Quintuplets (TQQ) Parenting Package available in the MOST
General Store )
for Communicating with your Insurance Company and your employer
have the power to pursue all available ways to obtain appropriate
coverage through your health plan. Taking charge of your health
care needs, being familiar with your benefits, and communicating
with your plan and employer give you the best opportunity to obtain
coverage of appropriate and necessary medical care. How
to appeal a decision from your insurance company
Information Regarding Insurance Companies
for High Out of Pocket Cost- Insured but not enough?
Patient Access Network Foundation is a non-profit 501(c)(3)
organization dedicated to improving access to needed health services
for insured patients who cannot afford the out-of-pocket costs
associated with their treatment.
help with medical costs without insurance, check out the following
Kids & Families – Their statewide coalitions
work with public officials, health professionals, educators, businesses,
social service agencies and faith-based organizations to design
and implement strategies to simplify enrollment processes and
renewal processes for SCHIP and Medicaid. They will help you find
resources on low-cost or free medical services in your state.
For more information, call 1-877-KIDS-NOW or visit www.insurekidsnow.gov.
The Individual Cancer Assistance Network (ICAN)
– This network provides a chance for cancer patients and
their families to deal with cancer-caused stress by meeting with
a counselor for up to six one-on-one counseling sessions. No health
insurance is needed to take advantage of ICAN counseling. People
pay only what they can afford to pay. Cancer patients or their
family members can call 1-866-359-ICAN.
The National Center for Policy Analysis – The National Center
for Policy Analysis has done a study on how to lower your prescription
drug costs. The study includes information on pill splitting,
generic drugs and financial assistance to lower drug cost. For
more information log on to www.ncpa.org/pub/st/st262/.
Center for Patient Advocacy – This is a grass roots
organization that works to ensure patients have timely access
to the highest quality health care in the world. They are a diverse,
nationwide coalition with a wealth of information on patient rights.
This site includes information on patient dumping laws –
refusing emergency care for lack of insurance. For more information,
Do Families Say About Home Nursing?
"If they lose this job, they can move on.
If we lose our child, we don't move on as well."
Your NICU Infant
for Both Mom and Baby
By Amy E. Tracy
Flu Season Subsides While Incidence of the Most Common and Lethal
Children's Respiratory Virus Continues to Rise Wednesday
January 28, 11:23 am ET